Tag: trivialization

Chronic fatigue syndrome/ME

Comment on: Chronic fatigue syndrome/myalgic encephalitis. [Br J Gen Pract. 2002]

 

In previous correspondence,1 I challenged the trivialisation of chronic fatigue syndrome (CFS), and the generalisation and speculation in an editorial on chronic fatigue.2 The authors dismissed my arguments as, in their opinion, I had not demonstrated that I ‘was prepared and able accurately to read and interpret a scientific article’.3 I consider this remark to be unfair and unjustified.

I shall discuss each of their points in turn. First, they denied that by referring to the illness as ‘fatigue or its synonyms’, they were trivialising ‘the suffering of patients with PUPS (persistent unexplained physical symptoms)’. The authors must be aware of the controversy surrounding the word ‘fatigue’. As one affected surgeon wrote: ‘there is nothing in your experience in medical school, residency, or practice with its gruelling hours and sleep deprivation that even approaches the fatigue you feel with this illness. Fatigue is the most pathetically inadequate term’.4 Other writers on the subject recognise this, which is probably why most tend to describe the main symptom as profound, debilitating or disabling fatigue. But this was not the case here. The authors clearly equated CFS with (normal) tiredness and chronic fatigue. Elsewhere, they referred to ‘commonplace symptoms’ and in their response, again wrote about ‘fatigue and its synonyms’

You can read the full comment here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1314477/pdf/12528593.pdf

 

Source: Goudsmit E. Chronic fatigue syndrome/ME. Br J Gen Pract. 2002 Dec;52(485):1023-4. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1314477/pdf/12528593.pdf

 

Chronic fatigue syndrome/myalgic encephalitis

Comment in: Chronic fatigue syndrome/ME. [Br J Gen Pract. 2002]

Comment on: Doctors and social epidemics: the problem of persistent unexplained physical symptoms, including chronic fatigue. [Br J Gen Pract. 2002]

 

In their editorial (Journal, May 2002), Stanley et al argued that chronic fatigue should be categorised under ‘persistent unexplained physical symptoms’, and that these are often the result of the somatisation of ‘unhappiness’ and the misinterpretation of ‘normal functioning’. However, their analysis contained some notable flaws.

Firstly, there is more to chronic fatigue syndrome (CFS) than ‘tiredness and its synonyms’ and to ignore symptoms, such as vertigo, nausea, and photophobia, both misrepresents and trivialises this illness.

Secondly, the authors alluded to widespread somatisation, despite the lack of evidence that this is a major problem in relation to CFS. The suggestion that this is a homogeneous population of unhappy, prejudiced, attention-seekers is difficult to reconcile with evidence-based medicine, and the subtle accusations of mass exaggeration are stigmatising and unhelpful.

You can read the rest of this comment here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1314419/pdf/12236282.pdf

 

Source: Goudsmit E. Chronic fatigue syndrome/myalgic encephalitis. Br J Gen Pract. 2002 Sep;52(482):763; author reply 763-4. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1314419/pdf/12236282.pdf (Full article)

 

Chronic fatigue syndrome

Comment in: Chronic fatigue syndrome. [Br J Gen Pract. 1992]

Comment on: Antidepressant therapy in the chronic fatigue syndrome. [Br J Gen Pract. 1991]

 

Sir, The adoption of the term chronic fatigue syndrome for conditions like myalgic encephalomyelitis and effort syndrome in the paper by Lynch and colleagues (August Journal, p.339) is difficult to understand. The differences between these disorders are so marked, that an umbrella term is destined to be both confusing and misleading.

The emphasis on the term fatigue is unfortunate for many reasons. First; research has shown that only a tiny proportion of people with unexplained fatigue fulfil the standard diagnostic criteria for myalgic encephalomyelitis. (1) Secondly, Lynch and colleagues’ definition of chronic fatigue syndrome is too broad to distinguish people with myalgic encephalomyelitis from those who are feeling run down or depressed or suffering from the more common and less severe post-viral syndrome. Thirdly, the term trivializes the illness. Everyone gets tired now and then and most people find it hard to understand how some may be disabled by it. In our view, the name suggests something which is tolerable and volitional, requiring little more than adequate rest and a positive attitude. What the term fails to communicate is that the fatigue reported by people with myalgic encephalomyelitis is severe and debilitating; that it is unlike anything most of them have experienced before and that it is often associated with an intense influenza-like malaise. (2’3) We therefore agree with English that as far as myalgic encephalomyelitis is concerned, ‘fatigue is the most pathetically inadequate term’. (2)

You can read the rest of this comment here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371802/pdf/brjgenprac00062-0041.pdf

 

Source: Goudsmit EM, Macintyre A, Sullivan M. Chronic fatigue syndrome. Br J Gen Pract. 1991 Nov;41(352):479-80. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371802/