The International Association of ME/CFS has developed a primer for clinical practitioners, which they have made freely available. In this Primer, the collected wisdom of many experienced clinicians and clinician-scientists has been gathered. Here, you’ll find advice on how to diagnose ME/CFS, and on therapies that appear to be beneficial, although not curative.
Primer features: Exclusionary tests that should be performed, differential diagnoses, how to make an accurate diagnosis, evidence-based treatments for primary symptoms, management strategies, pathophysiology, clinical concerns, pediatric ME/CFS, etiology, and extensive appendices.
This pediatric primer was developed to cover the many unique aspects of the diagnosis and management of pediatric ME/CFS. The text was developed by consensus of the members of International Writing Group for Pediatric ME/CFS, who have made every effort to ensure that the information is accurate and up to date.
The published literature on pediatric ME/CFS is modest. Many studies on ME/CFS have only enrolled adults. Where it has been helpful, we have sometimes cited studies in adults and this is explained in the text. Where published studies are lacking, our recommendations are based on the clinical expertise of experienced medical practitioners.
This primer covers all aspects of the disease, including cardinal features, symptoms, presentation, prognosis, diagnosis, pathophysiology, etiology as well as worksheets, exclusionary tests, overlapping conditions and information relevant to clinicians in the treatment and management of ME/CFS in young people.