Support groups are invaluable resources for patients and caregivers. There is nothing like sharing an experience to help mitigate some of the isolation a chronic illness causes. There is also no better source of information on where to find helpful clinicians and clinics.
Phone groups are an excellent way to make contact with other people with ME/CFS.
Saturdays 8pm EST Participant Instructions:
Dial-In Number: (712) 770-4700
Enter your Access Code: 915110 followed by # sign.
Facebook has many support groups:
There are also groups that meet in person. These offer the chance of making some local friends. (Please search in the box below.)
Forums are another excellent way to find support groups. Topics on these groups cover treatments, recommended clinicians, symptoms, coping, events, and anything else that might be of interest to the ME/CFS community.
For a good discussion on why support is necessary, as well as links to groups, see: Finding Connection Within ME.
To find a support group in your area, type in your state:
If you would like to add a support group, and if your group is not already in the database (please check first), please fill out this form.
You should register before you can submit a support group. If you're already registered, please log in.