Medicare Coverage – Search by State
Medicare Extra Help: https://www.ssa.gov/medicare/prescriptionhelp/
Medicare beneficiaries can qualify for Extra Help with their Medicare prescription drug plan costs. The Extra Help is estimated to be worth about $4,000 per year. To qualify for the Extra Help, a person must be receiving Medicare, have limited resources and income, and reside in one of the 50 States or the District of Columbia.
Partnership for Prescription Assistance
Phone: (888) 477-2669
“The Partnership for Prescription Assistance has assisted nearly seven million people in the medicines they need for free or nearly free.”
Rx Assist’s List of Patient Assistance Programs
“RxAssist is a nationally recognized, web based medication assistance resource center. Established in 1999 with
funding from The Robert Wood Johnson Foundation, RxAssist gives providers, advocates, consumer and caregivers comprehensive, up-to-date information in an easy to use format.”
Free Medicine Program
“Our mission at the Free Medicine Program is helping patients in obtaining prescription drugs and medications
absolutely Free of charge.”
BenefitsCheckUp is a free service of the National Council on Aging to help adults over 55 find help with prescriptions and other basic necessities. From the website: “There are over 2,000 federal, state and private benefits programs available to help adults over 55. But many people don’t know these programs exist or how they can apply.”
The Medicine Program
The Medicine Program is a patient advocate organization and is a free service. “Our goal is to assist you and your family find, apply and qualify for the right Patient Assistance Program(s). By working closely with you, your doctor and the drug manufacturers we help cut through the red tape and assist you in receiving your medicine free-of-charge.”
The mission of NeedyMeds is to make information about assistance programs available to low-income patients and their advocates at no cost. Databases such as Patient Assistance Programs, Disease-Based Assistance, Free and Low- Clinics, government programs and other types of assistance programs are the crux of the free information offered online.
Rx Hope specializes in helping small, emerging pharmaceutical companies manage their Patient Assistance Programs. From the website: “As an integral part of the Triplefin group of companies, we are a highly professional team of caring and concerned people dedicated to making the patient assistance process as easy and comfortable as possible for the patient, the healthcare provider and the pharmaceutical company.”
Patient Advocate Foundation
The Patient Advocate Foundation (PAF) Co-Pay Relief Program (CPR) currently provides direct financial support to insured patients, including Medicare Part D beneficiaries, who are financially and medically qualified for pharmaceutical treatments and/or prescription medication co-payments, co-insurance and deductibles relative to your diagnosis.
“We are a nonprofit charity that provides critical medicine for people who can’t afford it. We offer more than 500 medications through our mail order pharmacy delivered to all 50 states, Puerto Rico and the Virgin Islands. With support of generous donors, we help more than 85,000 people each year get the medications they need to stay healthy.”
“Our goal was to create one resource where people with disabilities, their caretakers, family and friends, could easily locate the discounts for which they qualify and save money. And there are thousands of discounts! They cover a wide range of products and services, in over 30 categories. These are compiled by states and sorted by counties, in a site that is easy and comfortable to navigate. Each entry is either discounted or available at no cost.”
Good Rx: https://www.goodrx.com/
If you have not already discovered GoodRx, you had better get with it! Sign up at www.GoodRx.com or load the app onto your smartphone. Then when you need to pick up a prescription, enter the drug name and dose plus your zip code to find lowest prices and coupons for the medication in your area. GoodRx also offers appropriate online or mail order service, if you wish.
Got Hefty Medical Bills? Try Negotiating to Get Them Reduced
News and information about warnings, lawsuits, and recent news on various drugs and medical devices.
The web resource Drugdangers.com is sponsored by Seeger Weiss LLP. The site has pulled together as a single resource everything related to defective medical devices and drugs in order to promote education and awareness for victims, their families, and the general public. Our goal is to provide accurate, relevant information that can be used for general informational purposes, and to advocate for a greater awareness of the dangers of multiple drugs and devices that are still in use today. – See more at: http://www.drugdangers.com/about-us/
Seeger and Weiss is a law firm representing clients in class action lawsuits. The site is well referenced and contains a lot of useful information.
Extensive list of CFS/ME treatments of every kind. This site has everything
ImmuneSupport provides an excellent database of treatments as well as protocols.
This is the best source for patient experiences with pharmaceuticals. (Not restricted to CFS/ME)
Databases for doctors (worldwide), drugs, disability attorneys, and support groups.
NEWS AND INFORMATION
Phoenix Rising is Cort Johnson’s brain-child, and it is one of the best overall information sites out there. This website has literally everything: research, advocacy, treatments, personal accounts and great boards.
ProHealth (formerly The CFIDS and Fibromyalgia Health Resource) offers a broad selection of supplements frequently recommended for people with CFS/ME. Their website contains a Research section that includes over 20,000 articles about CFS/ME. ProHealth also distributes three informative newsletters free of charge.
Dr. Sarah Myhill
Dr. Myhill runs a great website, with all her views and treatments available for the reading. She covers every topic thoroughly, with excellent, clear explanations of what causes symptoms and how to treat them. This site is essential reading for patients with CFS/ME as well as doctors and clinicians.
Dr. Jacob Teitelbaum
Dr.Teitelbaum’s informative articles can all be found here.
Co-Cure is now a listserv. (Their website is no longer functioning.) You can search archived material by clicking on the link: https://web.archive.org/web/20140326134109/http://www.co-cure.org/
The CFS Report
The CFS Report has a lot of everything: news reports, links, research, advocacy, as well as an interesting video of Dr. Montoya speaking at Stanford University about CFS/ME.
ME-CFS Knowledge Center
This site truly is a knowledge center. It provides general information, links to organizations, lists of support groups, and a video library.
National Alliance for Myalgic Encephalomyelitis (NAME)
NAME provides access to a large body of CFS research, organized by year and by topic.
General FM community resources.
FMS support groups located in the U.S.
This is a resource site with links to every ME/CFS organization in the world and with extensive local links in the U.K.
The Medical Insider
This informative and well-organized website covers all bases: research, treatment, analysis, and links to practitioners in the U.K.. Great explanations of the mechanisms of CFS/ME (with pictures!). If you don’t understand Pall’s NO/ONOO‾ hypothesis, or Cheney’s theories on diastolic dysfunction, the Medical Insider will enlighten you. Also lists many European and U.K. online suppliers for supplements.
CFS/ME and Fibromyalgia Self Help
A website created by Bruce Campbell, who before becoming ill, was a consultant to self-help programs for chronic illness at the Stanford University Medical School. The site contains some good articles on coping techniques.
Health Rising is Cort Johnson’s new website. It is focused on every aspect of treating CFS/ME – recent research, news, information on specialists, and treatments. Cort distributes an excellent free newsletter with the latest in CFS/ME news.
Shoutout About ME
Shoutout is an online magazine with breaking news about ME/CFS events, research, and advocacy. It is edited by Russell Logan, a former journalist and speechwriter with over 30 years experience. The site is beautifully laid out.
Do you want to know how other people cope with CFS/ME, how they recovered, what treatments they’ve tried, what doctors they’ve seen? Forums are where you get all that, and more.
Phoenix Rising Forums
You can’t beat these forums. Lots of great information by people who know what they’re talking about.
This is an Australian forum with an Aussie sense of humor and very nice section on recovery. The name of the forum
comes from the Matchbox 20 song, “I’m not crazy I’m just a little unwell.”
This is a very broad-based info center – 123,975 posts on 10,442 topics by 1550 members.
ProHealth defines itself as “commerce with compassion.” Their boards are open to just about any topic.
Hawkes’ Health Forum
Hawkes’ Health Forum has a good sub-section on CFIDS, as well as a lot of information on supplements and other related health concerns. Very welcoming.
ME/CFS Fibromyalgia – The Invisible Disease
Jayne Barnard, a long-time CFS/ME veteran, has assembled this informative: news, research, humor, information for professionals and a forum.
Sandy Robinson has written scores of articles about CFS, FM and interstitial cystitis. They are all on this site.
Living with CFS/ME
Maija Haavisto, a Finnish journalist and medical writer with CFS/ME, has kept careful track of every treatment she has tried, and there have been many. Haavisto’s knack for organization is apparent on this website, which contains not only detailed information about CFS/ME treatments, but a clear description of relevant symptoms, book reviews, articles and useful links. A free ebook containing descriptions of hundreds of CFS/ME medications, Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia(abridged version) is available on her website.
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS):Helpful Hints for Daily Living and Information on Services and Resources
This is an informative website run by Priscilla Ling, an occupational therapist with ME.
The ME-CFS Community
This is a worldwide community for individuals who wish to learn from, and directly communicate with those who are afflicted with ME/CFS.
CF Alliance discussion group
“All info and opinions posted are ONLY about CFS/ME/FM and their related illnesses such as Brainfog, IBS, RLS, TMJ, Lupus, Sjögren’s, Candida, Raynaud’s, Celiac, Sinusitis, Lyme, Arthritis, Chronic Pain, GWS and MCS. ONLY helpful health and disability info, caring support and mutual respect are posted here.”
FREE ONLINE PUBLICATIONS
Diagnosing and Treating Chronic Fatigue Syndrome, by Dr. Sarah Myhill
You may also call the Substance Abuse and Mental Health Administration’s help line for referrals to local services: 1-800-662-HELP (4357).