Virtual reality education on myalgic encephalomyelitis for medical students and healthcare professionals: a pilot study

Abstract:

Introduction: Myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) is a chronic condition which may be characterised by debilitating fatigue, post-exertional malaise, unrefreshing sleep, and cognitive difficulties. ME/CFS has significant negative impact on quality of life for those living with the condition. This may be exacerbated by a lack of knowledge within healthcare regarding the condition. Previous research has found that immersive virtual reality (VR) educational experiences within healthcare education can increase knowledge and empathy.

Methods: The present study employed a quasi-experimental pre-test-post-test design to investigate the impact of a short immersive VR educational experience on knowledge of ME/CFS and empathy for those living with the condition. The VR experience placed participants into a virtual scene which told real life stories of the experience of people living with ME/CFS and their families. 43 participants completed in this pilot study: 28 medical students and 15 primary care health professionals. Participants completed measures of knowledge of ME/CFS and empathy before and after engagement with the experience.

Results: A statistically significant increase was found for levels of knowledge (p < .001, d = 0.74) and empathy (p < .001, d = 1.56) from pre-VR experience levels to post-VR experience levels with a medium and large effect size, respectively. Further analysis revealed no statistically significant difference between baseline levels of knowledge of ME/CFS between healthcare professionals and medical students.

Discussion: The present study is the first to explore the use of this short immersive VR experience as an education tool within healthcare to increase knowledge of ME/CFS, and empathy for those living with the condition. Findings allude to the previously established lack of knowledge of ME/CFS within healthcare although promisingly the increases in knowledge and empathy found suggest that this immersive VR experience has potential to address this. Such changes found in this small-scale pilot study suggest that future research into the use of VR as an educational tool within this setting may be beneficial. Use of a control group, and larger sample size as well as investigation of retention of these changes may also enhance future research.

Source: Anderson T, Duffy G, Corry D. Virtual reality education on myalgic encephalomyelitis for medical students and healthcare professionals: a pilot study. BMC Med Educ. 2024 Sep 17;24(1):1018. doi: 10.1186/s12909-024-05990-2. PMID: 39289650; PMCID: PMC11409778. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11409778/ (Full text)

Brief report: The accuracy of parents for the thoughts and feelings of their adolescent suffering from chronic fatigue: a preliminary study of empathy

Abstract:

OBJECTIVE: This study examined the actual and estimated empathic accuracy (EA) of the parents of adolescents with chronic fatigue syndrome(CFS).

METHODS: The actual EA of both parents (n = 24) was assessed in relation to the thoughts and feelings of their child (n = 14) about CFS and about other life events. Adolescents were also asked to estimate the parents’ EA.

RESULTS: For the actual EA, both parents were significantly less accurate regarding the adolescent’s thoughts and feelings about CFS than about other life events. Fathers were just as empathically accurate as mothers. For the estimated EA, however, results indicated that adolescents perceived their mother to be more empathically accurate than their father. Actual EA and estimated EA about CFS were negatively correlated for fathers, not for mothers.

CONCLUSIONS: Results are discussed in terms of the importance of assessing EA in relation to other dimensions of empathic understanding and distress in the observer.

 

Source: Vervoort T, Crombez G, Buysse A, Goubert L, Backer TD, Ickes W. Brief report: The accuracy of parents for the thoughts and feelings of their adolescent suffering from chronic fatigue: a preliminary study of empathy. J Pediatr Psychol. 2007 May;32(4):494-9. Epub 2006 Sep 29. http://jpepsy.oxfordjournals.org/content/32/4/494.long (Full article)

 

Couples’ perceptions of wives’ CFS symptoms, symptom change, and impact on the marital relationship

Abstract:

The purpose of this descriptive correlational study was to describe the differences in couples’ perceptions of wives’ Chronic Fatigue Syndrome (CFS) symptoms and to describe the relationship between changing symptoms and the marital relationship.

The convenience sample of 131 wives with CFS and their spouses reported symptom changes similarly. However, wives reported significantly higher problem levels for constitutional, fatigue, cognition, central nervous system (CNS), musculoskeletal, and allergy symptom domains and significantly less problem levels of mood disturbance domain than their husbands.

Husbands who reported more symptom changes also reported lower marital adjustment, less empathy and support from their wives, and more conflict within the relationship. Wives who reported more symptom changes reported lower marital adjustment, less empathy for their husbands, and more conflict within the relationship and had husbands who reported lower marital adjustment and less empathy and support by the wives.

 

Source: Goodwin SS. Couples’ perceptions of wives’ CFS symptoms, symptom change, and impact on the marital relationship. Issues Ment Health Nurs. 2000 Jun;21(4):347-63. http://www.ncbi.nlm.nih.gov/pubmed/11249354