Self help organization’s advice on myalgic encephalomyelitis
…is worth emphasising that the quote that illustrates this came from Nursing Standard and not from a magazine for patients. The British organisations have long been unhappy with the way…
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Alternative and Complementary Therapies
…Techniques: Perrin Technique, Chelation, Coffee Enemas Immune Support: Transfer Factor, Live Cell Therapy Global Support: Hydrotherapy, Hyperbaric oxygen, Ayurveda Further Reading National Center for Complementary and Alternative Medicine http://nccam.nih.gov/…
Report on the 2021 IACFS/ME research and clinical conference
…anytime with viewing later. An additional 100+ individuals did not attend live and are interested in the conference recording which we expect will be available in early to mid-September. Our…
Survey of people with Myalgic Encephalomyelitis (ME) to explore their use and experiences of physiotherapy services in the UK
Abstract: 250,000 people live with Myalgic Encephalitis (ME) in the UK, this compares to 100,000 living with Multiple Sclerosis. In 2019, a survey by MEAction of 1906 people with ME,…
Covid-19: How Europe is approaching long covid
…a service largely depends on where you live—and in many countries action seems to be limited to guidance and monitoring. Read the rest of this article HERE. Source: Baraniuk C….
Impaired TRPM3-dependent calcium influx and restoration using Naltrexone in natural killer cells of myalgic encephalomyelitis/chronic fatigue syndrome patients
…function. Importantly, it has recently been reported that NTX restores impaired TRPM3 function in NK cells of ME/CFS patients. Methods: Live cell immunofluorescent imaging was used to measure TRPM3-dependent Ca2+…
Characteristics and impact of Long Covid: Findings from an online survey
…stress, and sleep disturbance commonly triggered symptoms. A third (32%) reported they were unable to live alone without any assistance at six weeks from start of illness. 16.9% reported being…
Please Help David Tuller, Our Champion!
…David Tuller’s spring fundraiser is now live! Tuller has been tireless in his battle against the GET/CBT ideological onslaught! He has much more work to do and he needs our…
Bodies in lockdown: Young women’s narratives of falling severely ill with ME/CFS during childhood and adolescence
…by phenomenology which yielded three central themes: The active and meaningful life I used to live; gradually developing unhomeliness and feeling pushed toward the edge; and left abandoned on the…
Long COVID: A proposed hypothesis-driven model of viral persistence for the pathophysiology of the syndrome
…JA. Long COVID: A proposed hypothesis-driven model of viral persistence for the pathophysiology of the syndrome. Allergy Asthma Proc. 2022 May 1;43(3):187-193. doi: 10.2500/aap.2022.43.220018. PMID: 35524358. https://pubmed.ncbi.nlm.nih.gov/35524358/ https://www.ingentaconnect.com/content/ocean/aap/2022/00000043/00000003/art00003;jsessionid=pp9ea7gev7kv.x-ic-live-01# (Full text…