PRESS RELEASE AND PUBLIC COMMENT
September 23, 2017 – Between one and two million Americans suffer from Myalgic Encephalomyelitis (ME), a chronic disease that profoundly disrupts the immune and nervous systems of those who contract it. Twenty-five per cent of those affected are severely ill, and unable to meet their needs. These patients rely on Medicaid services not only for access to medical care but for home assistance as well. The American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) is deeply concerned about the effect the proposed Graham-Cassidy Amendment will have on patients with ME.
The proposed changes to Medicaid outlined in the Graham-Cassidy Amendment could have a drastic impact on patients. Community services would be cut, hospitalizations could be eliminated, pre-existing conditions – including ME – would be excluded from coverage. Laboratory services would also be curtailed, which would be devastating for ME patients, who frequently experience secondary infections as a result of immune dysfunction. Premiums would rise, resulting in a loss of insurance for a significant portion of those who have lost income as a result of ME.
We strongly urge Congress to reject the proposed Graham-Cassidy Amendment. Those living with this debilitating disease must have access to affordable, quality care, which is something the Graham-Cassidy Amendment cannot provide.
*The American ME and CFS Society, a national 501(c)(3) nonprofit, is dedicated to serving the needs of patients and caregivers through support, advocacy, and education.