Help Desperate Patients Get Crisis Support!

 

AMMES’ Crowdrise campaign to raise funds for emergency aid for patients in financial crisis was successful! We raised $10,000 in online donations and in checks sent separately by donors. AMMES has already begun processing applications to the fund. A big THANK YOU to everyone who donated!

So any patients are disabled and unable to work. Assistance at the right time can go a long way. Our mission is to help patients and their families in practical ways. This is one of them.

This is the description that appeared on Crowdrise. The campaign ended on May 11, 2018. You can still donate to this fund HERE.

“Between 836,000 and 2.5 million Americans suffer from ME/CFS. One quarter of these patients are severely ill, and are either bedbound or housebound. Severely ill patients are unable to work, and many are denied disability. The financial crisis generated by a loss of income coupled with rising costs of medical care can force patients to forego necessary care and medication. In some cases, patients may even lose their homes and end up living in cars. In order to assist patients in need, AMMES is setting up a crisis fund to provide one-time grants to patients for specific needs. The funds can be used to purchase a wheelchair, pay a medical bill, hire home care, secure adequate housing, and other basic needs. All applicants will be required to provide written medical confirmation of their diagnosis, proof of financial need, and document the specific purpose of the grant. Where possible, a phone interview will be conducted. (Some severely ill patients cannot speak.) Any patient within the United States and its territories is eligible.”

 

American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society Statement on the Graham-Cassidy Amendment

PRESS RELEASE AND PUBLIC COMMENT

September 23, 2017 – Between one and two million Americans suffer from Myalgic Encephalomyelitis (ME), a chronic disease that profoundly disrupts the immune and nervous systems of those who contract it. Twenty-five per cent of those affected are severely ill, and unable to meet their needs. These patients rely on Medicaid services not only for access to medical care but for home assistance as well. The American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) is deeply concerned about the effect the proposed Graham-Cassidy Amendment will have on patients with ME.

The proposed changes to Medicaid outlined in the Graham-Cassidy Amendment could have a drastic impact on patients. Community services would be cut, hospitalizations could be eliminated, pre-existing conditions – including ME – would be excluded from coverage. Laboratory services would also be curtailed, which would be devastating for ME patients, who frequently experience secondary infections as a result of immune dysfunction. Premiums would rise, resulting in a loss of insurance for a significant portion of those who have lost income as a result of ME.

We strongly urge Congress to reject the proposed Graham-Cassidy Amendment. Those living with this debilitating disease must have access to affordable, quality care, which is something the Graham-Cassidy Amendment cannot provide.

*The American ME and CFS Society, a national 501(c)(3) nonprofit, is dedicated to serving the needs of patients and caregivers through support, advocacy, and education.