As a part of the 2017 End ME/CFS Worldwide Tour, Linda Tannenbaum, CEO/President, spoke in six European countries and seven U.S. cities. Each visit included a presentation, Q & A session, and personal meet and greet. On the tour, Linda had the honor of meeting hundreds of patients, parents and caregivers. Each has a unique story and truly inspires us.
Linda’s talks were about the ground-breaking research OMF is supporting, as well as the research of several of our collaborators. Several of her talks were recorded along the way and we thank all of our team OMF volunteers for doing so. Linda’s recent talk in New York City on November 1, 2017 was recorded, edited and is presented here. Thank you to fellow parent, Stephen Appelbaum, for helping OMF on behalf of his daughter Carly Appelbaum Goldberg. Volunteers like Stephen are helping OMF to spread our message of hope. We thank you all.
Linda’s presentation is now available for you to view. We invite you to watch Linda’s talk to learn more about the research OMF is funding and facilitating and the impact we are having on open and collaborative global research.
Continue reading “Linda Tannenbaum Worldwide Tour Talk”
Jennifer Brea is an active Harvard PhD student about to marry the love of her life when suddenly her body starts failing her. Hoping to shed light on her strange symptoms, Jennifer grabs a camera and films the darkest moments unfolding before her eyes as she is derailed by M.E. (commonly known as Chronic Fatigue Syndrome), a mysterious illness some still believe is “all in your head.”
In this story of love and loss, newlyweds Jennifer and Omar search for answers as they face unexpected obstacles with great heart. Often confined by her illness to the private space of her bed, Jen is moved to connect with others around the globe. Utilizing Skype and social media, she unlocks a forgotten community with intimate portraits of four other families suffering similarly. Jennifer Brea’s wonderfully honest portrayal asks us to rethink the stigma around an illness that affects millions of people. Unrest is a vulnerable and eloquent personal documentary that is sure to hit closer to home than many could imagine.
Continue reading “Unrest: A Film About Severe ME/CFS is Released!”