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American Myalgic Encephalomyelitis and
Chronic Fatigue Syndrome Society

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Mestinon (pyridostigmine) Rating

Please only submit a rating once.

How satisfied were you with mestinon-pyridostigmine?

5 – Very satisfied. This treatment was very helpful.

4 – Satisfied. This treatment helped.

3 – Somewhat satisfied. This treatment helped somewhat. I may try it again.

2 – Not satisfied. This treatment was not helpful.

1 – Dissatisfied. I had a bad experience with this treatment. I would never try it again.

Dosage (such as 30 mg)

Frequency

Times per

Length of time taking this treatment

Sex

M F

Age

Years ill – pick the closest number

Why were you taking mestinon-pyridostigmine? (Please be brief.)
Briefly describe any side effects you experienced.
Additional Comments
Please indicate your illness severity. (Check the box that was closest to you when you were being treated)

Severe = I can’t get out of bed and need help taking care of my personal needs.

Moderate/Severe = I am housebound. I can do light housekeeping.

Moderate = I can drive, go shopping, and do some part-time work.

Moderate/Mild = I can work part time and do some socializing.

Mild = I can work full time. My social life is curtailed, and I have to be careful not to overdo.

Help us continue our mission!

Breaking News

AMMES WANTS YOU!
AMMES needs volunteers! AMMES is actively recruiting volunteers to help AMMES grow and prosper. Fundraising coordinator – should have experience …Read More »
WE WANT TO HELP!
Getting help is a priority for people who are ill. This is especially important for ME/CFS patients who have lost their …Read More »
Covid and ME/CFS
Announcement: AMMES has recently added an informational page about COVID-19 and ME/CFS. The page includes physicians’ recommendations regarding the COVID …Read More »
Epigenetic reprograming in myalgic encephalomyelitis/chronic fatigue syndrome: A narrative of latent viruses
Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic disease presenting with severe fatigue, post-exertional malaise, and cognitive disturbances-among a …Read More »
Quantitative Proteomics of COVID-19 Recovered Patients Identifies Long-Term Changes in Sperm Proteins Leading to Cellular Stress in Spermatozoa
Abstract: Following an initial recovery, COVID-19 survivors struggle with a spectrum of persistent medical complications, including fatigue, breathlessness, weight loss, …Read More »
Blood transcriptomic analyses reveal persistent SARS-CoV-2 RNA and candidate biomarkers in post-COVID-19 condition
Abstract: With an estimated 65 million individuals affected by post-COVID-19 condition (also known as long COVID), 1 non-invasive biomarkers are …Read More »
Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in Chronic Fatigue Syndrome with Orthostatic Intolerance
Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with orthostatic intolerance (OI) is characterized by neuro-cognitive deficits perhaps related to upright hypocapnia …Read More »
An approach to finding specific forms of dysbiosis that associate with different disorders
Abstract: Background Many disorders display dysbiosis of the enteric microbiome, compared with healthy controls. Different disorders share a pattern of dysbiosis …Read More »

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The American ME and CFS Society

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