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American Myalgic Encephalomyelitis and
Chronic Fatigue Syndrome Society

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Mestinon (pyridostigmine) Rating

Please only submit a rating once.

How satisfied were you with mestinon-pyridostigmine?

5 – Very satisfied. This treatment was very helpful.

4 – Satisfied. This treatment helped.

3 – Somewhat satisfied. This treatment helped somewhat. I may try it again.

2 – Not satisfied. This treatment was not helpful.

1 – Dissatisfied. I had a bad experience with this treatment. I would never try it again.

Dosage (such as 30 mg)

Frequency

Times per

Length of time taking this treatment

Sex

M F

Age

Years ill – pick the closest number

Why were you taking mestinon-pyridostigmine? (Please be brief.)
Briefly describe any side effects you experienced.
Additional Comments
Please indicate your illness severity. (Check the box that was closest to you when you were being treated)

Severe = I can’t get out of bed and need help taking care of my personal needs.

Moderate/Severe = I am housebound. I can do light housekeeping.

Moderate = I can drive, go shopping, and do some part-time work.

Moderate/Mild = I can work part time and do some socializing.

Mild = I can work full time. My social life is curtailed, and I have to be careful not to overdo.

Help us continue our mission!

Breaking News

AMMES WANTS YOU!
AMMES needs volunteers! AMMES is actively recruiting volunteers to help AMMES grow and prosper. Fundraising coordinator – should have experience …Read More »
WE WANT TO HELP!
Getting help is a priority for people who are ill. This is especially important for ME/CFS patients who have lost their …Read More »
Covid and ME/CFS
Announcement: AMMES has recently added an informational page about COVID-19 and ME/CFS. The page includes physicians’ recommendations regarding the COVID …Read More »
Red Blood Cell Morphology Is Associated with Altered Hemorheological Properties and Fatigue in Patients with Long COVID
Simple Summary: SARS-CoV-2 alters the properties of oxygen-carrying red blood cells (RBCs) through a possible deterioration of hemorheological properties, such …Read More »
Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospective BAYNET FOR ME/CFS Study
Abstract: Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) presents significant challenges for affected children and adolescents, their social environment, and treating physicians, …Read More »
Cognitive impact and brain structural changes in long COVID patients: a cross-sectional MRI study two years post infection in a cohort from Argentina
Abstract: Objective: Long COVID is a condition characterised by persistent symptoms after a SARS-CoV-2 infection, with neurological manifestations being particularly frequent. …Read More »
Postural orthostatic tachycardia syndrome and other common autonomic disorders are not functional neurologic disorders
Introduction: In the past 4 years of COVID-19 and Long COVID, a renewed interest in postural orthostatic tachycardia syndrome (POTS) …Read More »
On the Prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome after a SARS-CoV-2 infection
Introduction: There is an increasing body of evidence connecting the post-acute SARS-CoV-2 condition (PASC, commonly known as long COVID) to …Read More »

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The American ME and CFS Society

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