Blogs are a great way to keep up with the latest news and information about ME/CFS, as well as connecting with other people who have the disease.
For more blogs visit ME/CFS Blogroll.
News & Information
CFS Central:Beyond-the-headlines reporting on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Mindy Kitei is an established journalist with a pithy style and a nose for news that will appeal to any reader. A must-see for anyone who wants to keep up on the latest in CFS/ME events. Note: Blog has not been updated since 2015.
“Consuegra” is the father of a young woman who fell ill with CFS/ME several years ago and has been housebound ever since. This blog is an excellent source of information. Videos of the 2011 Mt. Sinai conference are posted here (archives: Dec, Nov 2011), including Dr. Kenny De Meirleir’s enlightening presentation on GcMAF.
“Monitoring the development of DSM-5 and ICD-11.” Dx Revision Watch is maintained by Suzy Chapman.
Cort Johnson received a BA in Philosophy from Cal State Long Beach in the late 1980′s and a MS in Environmental Studies from San Jose State University around 2000. Cort created Phoenix Rising, which by 2010 had become the most visited ME/CFS website on the internet. In December 2012, with the help of the Simmaron Research Foundation, Cort left Phoenix Rising to form Health Rising. Cort writes in an easy conversational style about health-related research and other ME/CFS and FM topics.
“Dr. Speedy” is a medical doctor and an ME patient. This blog is packed with Dr. Speedy’s insightful and delightfully irreverent critiques of the latest medical and research articles. You could spend all day here.
“A practical resource for treating CFS/ME … coping tips, specialists, books, articles, research, and advice on how to recover from this debilitating illness.” Erica Verrillo is the author of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition. She is the author of five novels, and her short stories have appeared in numerous literary magazines. Before falling ill she was completing a PhD in Speech Communication at UT Austin. She hold a Master’s Degree in Linguistics from Syracuse University and a BA in History from Tufts. Note: Blog has not been updated since 2017.
Phoenix Rising is one of the most popular ME/CFS sites on the net. Site features: Blog, forums, general information. resources, treatments, newsletter, and research articles. Phoenix Rising is a certified 501 (c) 3 non-profit corporation (EIN# 27-3313361).
Forum for ME/CFS news and research, treatments, symptoms and related research. The site also contains convenient monthly summaries of research.
A platform for exchange and sharing. Set up for and by people who want more clarity and clear communication about the disease ME and its seriousness.
Two ME/CFS patients present informative reviews of recent research. “For me skepticism refers to an appreciation of how little we know and how difficult it is to obtain reliable evidence. It’s about poking evidence, questioning it to see what holds up, and suspending judgement until we have some robust information. It’s also about understanding the history of medicine and the many times we thought we had an effective treatment when we didn’t.”
Advocacy
“Monitoring the development of DSM-5 and ICD-11.” Dx Revision Watch was maintained by Suzy Chapman. As of 2015 no new posts are being published, but the archived content remains available.
Jennie Spotila served on the Board of Directors of The CFIDS Association of America from 2006 to 2011, and served as Chairman in 2008 and 2009. She has testified before the CFS Advisory Committee on multiple occasions, and has given many media interviews about the illness. Occupy CFS is a blog about living with CFS, including the politics, research, medicine, and personal experiences.
Gabby Klein is a wife, mother, artist and advocate fighting for the rights of ME patients. Note: Blog has not been updated since 2019.
Mary M. Schweitzer, Ph.D. is a former history professor. In addition to her blog, she keeps an informational website, the ME and CFS Information Page, with essays, links, reports, conference summaries and other material. Note: Blog has not been updated since 2016.
Jeannette Burmeister is an attorney disabled with myalgic encephalomyelitis. She blogs about legal issues surrounding ME/CFS. Her blog features links to public testimony from ME/CFS patients, as well as media coverage of the disease. Note: Blog has not been updated since 2016.
Liz Willow came down with sudden-onset Myalgic Encephalomyelitis (ME) in 1990. Bedridden and housebound for many years, she is now a bit more mobile but still have major cognitive problems. She is intimately familiar with the history and politics of this disease. Her hope is that she can share her ideas regarding what we who are ill (and those who care for us or about us) can do to help our situation. Note: Blog has not been updated since 2015.
Utting-Wolff Spouts (UK)
“Encompassing the natural and social sciences, politics and social justice issues.” Claudia Gillberg and Geoffrey Jones have sixty years’ experience of debilitating, chronic illness between them, and they think it is time for a more intelligent discourse about chronic illness at all levels of society.
Valerie Eliot Smith (UK)
Valerie Eliot Smith is a British lawyer. Her background also includes experience in media relations and journalism, psychotherapy, conflict resolution and HR. She trained as a psychotherapist from 2001-2 but became too ill to complete the full course. She is a Visiting Scholar at the Centre for Commercial Law Studies at Queen Mary, University of London. She continues advocacy work on behalf of ME/CFS patients as and when she can.
Personal
All About ME
Artifacts of ME
Chronic Fatigue Survivor’s Blog
Chronically Creative
Dreams at Stake
Empty Thoughts, Rewritten
Infinite Daze
Journey with ME
Just ME
Learning to Live with ME/CFS
Life in a Slow Lane
Little Wings
My A-Z of ME
My World
Quixotic
Rag and Bone Shop of the Heart
Smiling Clare
Velo-Gubbed Legs
Research
CFS Remission
Jackson Laboratory Collaborative Research Center
Coping
Severe ME
No Poster Girl
Stonebird
Understanding Severe ME
Galen Warden Writes – Galen writes about James Strazza, her son who is bedbound with Severe ME/CFS: the story of his illness and the ignorance, denial and gaslighting that made his illness severe.